At MoveUP, we’re proud to collaborate with healthcare leaders like IQVIA France in collecting and managing electronic Patient-Reported Outcomes (ePROs) for real-world studies. Recently, IQVIA France shared valuable insights into the importance of ePROs and the role flexible tools like ours play in clinical research.

Here's what we learned from their experience, and how we’ve helped support their efforts in improving healthcare outcomes through patient-reported data.

The Value of Patient-Reported Data in Healthcare

In clinical research, it’s crucial to not only assess treatment efficacy but also understand the patient’s perspective. ePROs are key to capturing this data, focusing on two critical areas:

• Patient-Reported Outcome Measures (PROs), which evaluate the results of care, like improvements in quality of life.

• Patient-Reported Experience Measures (PREs), which focus on how patients feel about their care—whether they were informed, how their treatment was managed, etc.

As more studies begin incorporating these measures, the focus is shifting toward understanding not just the clinical impact, but the lived experience of the patient.

Enhancing the Data Collection Process

During the interview, the team emphasized the need for flexible, user-friendly tools to capture this data efficiently. This is where MoveUP’s role has been vital to :

1. Ensure Seamless Integration: Clinical studies often require the use of multiple devices or digital tools, from wearable technology to medical devices. Our platform enables smooth integration of these components, ensuring that patient data is collected without interruptions. This flexibility allows researchers to adapt their studies as needed.

2. Prioritize a Simple User Experience: One of the key challenges in data collection is patient engagement. If patients find the system difficult to use, they’re less likely to provide accurate or complete data. We’ve focused on creating an easy-to-use interface that simplifies the process, while also balancing reminders to keep patients engaged without overwhelming them.

3. Structure Data for Fast Analysis: Collecting data is just the first step; how it’s structured for analysis is just as important. Our tools ensure that data is organized efficiently, allowing research teams to quickly extract insights and move their studies forward.

Addressing Key Challenges in ePRO Collection

The conversation also highlighted common challenges in real-world studies and how we’ve worked together to overcome them:

• Selecting the Right Questionnaire: With so many patient-reported outcome measures available, choosing the right one that fits the study’s objectives is crucial. In many cases, we’ve assisted in making sure the questionnaire is not only relevant but also easy to implement electronically.

• Avoiding Bias in Data: A unique point raised was about limiting the impact of real-time data on patient behavior. For example, if patients can see how far they’ve walked during the day, they might alter their behavior based on that feedback, which can distort study results. Our system ensures that data is collected passively, preserving the integrity of real-world conditions.

• Collaboration to Solve Challenges: No study is without its challenges. Our developers worked closely with their team to address issues, especially when it came to integrating new devices or meeting specific study requirements. This close collaboration allowed us to tackle potential roadblocks quickly and keep studies on track.

Flexible Tools for Future Studies

One of the most important takeaways from our collaboration is the need for tools that can evolve with the study. Whether it's adding new devices or adapting the system to different data collection needs, we’ve ensured that our platform remains flexible. This adaptability is key to ensuring the success of clinical studies now and in the future.

By continuously improving our platform, we help research teams collect, analyze, and use patient-reported data more effectively, leading to better insights and, ultimately, improved healthcare outcomes.

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